June 1st, 2007
An account of my experience with Hodgkin’s disease
The Story
Diagnosis (last updated 2/6/03)
Staging (last updated 2/24/03)
Choosing a Treatment (last updated 2/25/03)
Chemo (last updated 2/25/03)
Hiatus (last updated 5/3/03)
Radiation (last updated 6/13/03)
Aftermath (last updated 5/15/07)
Cast of Characters
If you’re here, you probably know us, but just in case….
Mike: my husband
Ben: my son, age 6
Emmy: my daughter, turned 2 in the course of the story
TiVo: where I work
Alana: my sister. Also works at TiVo.
Mom and Bud: my mom (duh) and step-father
Dad and Audrey: my dad (duh again) and step-mother
The Medical Personnel, in order of appearance
Dr. David Francisco: my usual doctor
Dr. Peter Naruns: the surgeon who did the biopsy
Dr. Peter Yu: the first oncologist I saw
Dr. Bill Loo: the Stanford Radiation Oncologist resident who works with Dr. Horning
Dr. Sandra Horning: the Stanford oncologist who will treat me
Sheila Breslin, RN: The nurse in Stanford’s lymphoma clinic
Dr. Brad Ekstrand: another doctor who works with Dr. Horning
Dr. Richard Hoppe: the Stanford radiation oncologist who will treat me
Dr. David Roberge: another radiation oncologist who works with Dr. Hoppe
Useful Links
Amusing quotes (last updated 3/25/03)
The Bleo Awards (last updated 5/3/03)
Some thoughts (last updated 10/8/03)
The National Cancer Institute’s Hodgkin’s page
Preston Hunt’s blog (Hodgkin’s diagnosed October 20, 2003, finished treatment March 12, 2004)
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February 1st, 2007
Written some time in 2006, committed to the blog in 2007: One day, during radiation, I hit a wall. The world, which had always seemed full of adventure and at least the possibility of joy, was deflated. The chemo and radiation were killing the cancer cells, but I thought that they were also taking away my spirit. I was going to pop out the other end of this thing alive, for sure, and able to go back to doing whatever it was that I did, but the joy would be gone. I knew healthy, and I knew sick (bearable only because it would end), but I feared that the best I could hope for after Hodgkins was no-longer-sick. Read the rest of this entry »
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July 23rd, 2004
Friday, 6/27/03: Well, I didn’t get shingles, but that didn’t prevent me from some medical excitement this week. Starting last week, I noticed a big red blotch on my left shin - it looked like a bruise, but it itched like a weird mutant mosquito bite. A few days later, another one appeared on my right calf. Read the rest of this entry »
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July 10th, 2004
This advice is stuff nobody told me, and I didn’t find in any booklets from the American Cancer Society, from the social worker at the hospital, or anyone else. Hopefully someone will find it useful. Read the rest of this entry »
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June 13th, 2003
Tuesday, 5/6/03: Yesterday was another meeting with Dr. Roberge and Dr. Hoppe. They went over the information about short term and long term side effects that I’d heard at the first visit, and then it was off to a CT scan, this one with no fasting, pina colada stuff, or injections (if they keep taking indignities away, I’ll have nothing to write about!). Read the rest of this entry »
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May 3rd, 2003
Tuesday, 4/29/03: Last week was my doctor-free week. By about Tuesday, I was feeling pretty much like my old self. By Wednesday, I was done with the Hodgkins-related diet restrictions. Salad never tasted so good. Read the rest of this entry »
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April 21st, 2003
| Hair Situation |
A nimbus of brown. If I were two weeks old, it would be cute. |
| Weight |
Down 6 from normal |
| Symptoms |
Clumsiness, absent-mindedness, and heartburn. Also some irrational exuberance due to the lack of a PICC line |
Read the rest of this entry »
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April 14th, 2003
| Hair Situation |
Very very patchy |
| Weight |
Down 6 from normal |
| Symptoms |
Fatigue, clumsiness, insomnia, absent-mindedness, and heartburn. And a partridge in a pear tree. |
Read the rest of this entry »
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April 4th, 2003
| Hair Situation |
Pretty darn thin. I can comb it back, without a part, and you don’t really see the bald patches, but then I look like Fonzie. I’m into serious hats now. |
| Weight |
Down 6 from normal |
| Symptoms |
Fatigue, heartburn |
Read the rest of this entry »
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April 1st, 2003
SARATOGA, California - Last night’s Bleo Awards ceremony, chemotherapy’s answer to the Oscars and the Emmys, honored the year’s best in side effects, medical procedures, and medication. Read the rest of this entry »
Posted in Fun Stuff | 2 Comments »